The global hemophilia ecosystem continues to evolve at great speed. Cohorts of patient groups, providers, policymakers, scientific experts (HCPs), and drug developers are reimagining treatment and care, and redefining patient journeys in their regions. However, without guaranteed equity of access to the best treatment and care on a global scale, and a place to share and compare successes, scientific innovation will continue to leave people behind. In 2023, we are convening the hemophilia community again to build upon the momentum of last year’s Advocacy in Hemophilia Series. It is time to evolve and equip current changemakers and engage and empower the next generation.Â
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Reuters Events Hemophilia Changemakers 2023 Series – in partnership with Sanofi – will consist of three virtual events in June, September, and November. We will bring together esteemed thought leaders to discuss policies, practices, and outline collective and individual calls to action that can positively impact all those living with hemophilia and rare diseases. We aim to foster shared learning, examine the role of accountability in improving standards of care, and generate demand for optimal and sustainable treatment for all.Â
"The hemophilia and other bleeding disorders community is experiencing new medications for better and more effective treatment of patients. Scientific evidence, HCPs' experience, and data are available. It is up to the leaders of this community to adjust to the speed of progress and effectively advocate to get decision makers to think about equitable treatment for all."
June 13, 2023
9:30am – 11am ET | 3:30pm – 5pm CET
This event has already taken place.
Champion voices to raise awareness, eliminate disparities, and develop next best actions
In the first event of the series, topic and advocacy leaders co-designed solutions, shared stories, and examined case studies that could lead to the implementation of a better future for women and girls with hemophilia.
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September 20, 2023
9:30am – 11am ET | 3:30pm – 5pm CET
This event has already taken place.
Advance quality of life by fostering a holistic approach to measuring and managing well-being
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For the second event of the series, topic and advocacy leaders will discuss the importance of effective pain and mental health management when seeking a standard of care fit for the 21st century.
November 7, 2023
9:30am – 11am ET | 3:30pm – 5pm CET
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How revolutionary leadership can inspire, catalyze and sustain long-term impact for hemophilia care
In the third and final event of the series, we are harnessing the history of changemaking in the bleeding disorder community to empower and equip the next generation. Revolutionary leaders will share expertise and actions we can take to improve lives for decades to come.
The landscape of hemophilia care has evolved greatly over the last few decades. Scientific innovation has unlocked a wide range of treatment options, allowing those living with bleeding disorders to focus less on living with their disease and more on living the life they choose. As the next generation of leaders rise in this new landscape, momentum cannot slow down. The global bleeding disorder community still faces significant barriers to achieving equity across all regions, inclusion of all people, and standards of care that encompass holistic well-being.
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In the third and final event of our Hemophilia Changemakers 2023 Series, in partnership with Sanofi, we are harnessing the history of changemaking in the bleeding disorder community to empower and equip the next generation. We will bring together a diverse group of revolutionary leaders to share their expertise on actions we can take to improve the lives of those living with bleeding disorders for decades to come.
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Join this event to learn how you can advance changemaking across these key areas:Â
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• Data: Effectively generate, collect, and use data to create change with governments, policymakers, and healthcare systems.
• Inspiration: Use the barriers you break down in your own life to inspire other people with bleeding disorders to speak up and advocate for their care.
• Education: Raise awareness of advancements, gaps in care and advocacy initiatives by utilizing already accessible information, translations and resources.
• Storytelling: Acquire effective and impactful tools to turn your experiences into evidence that drives the future of care.
• Connection: Develop partnering strategies to establish multi-stakeholder work across the bleeding disorder community, between rare disease organizations, and across the health industry to collectively transform care.
Catalyze and sustain long-term impact: Developing calls-to-action that drive fundamental change in the next generation.
• Set the stage for continued progress by looking back on the community’s greatest achievements over the last 50 years.
• Develop region-specific action plans, combining past learnings, current needs and innovative advocacy methods.
• Inspire the leaders of the future through key changemaking tools such as education, storytelling, and data.
• Share strategies for recruiting, nurturing, engaging and empowering the next generation of changemakers.
Revolutionary leadership that stands the test of time: Today’s innovation and tomorrow’s changemaking.
• Set patient, caregiver, advocacy leader, healthcare provider and policymaker calls-to-action for shaping a better future and positive health outcomes.
• Learn how education and storytelling can inspire the next generation of leaders to break down barriers and demand better outcomes.
• Forge the future with data. Explore how you can generate, collect, and use data to enforce change within healthcare systems
• Transform care collectively by building effective partnerships across the healthcare ecosystem, identifying and recruiting new changemaking stakeholders.
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Baiba Ziemele, Chairwoman of the Board, Latvia Hemophilia Society and VWD & RBD Committee Member, World Federation of Hemophilia 
Cesar Garrido, President, The World Federation of Hemophilia
Chris Bombardier, Executive Director, Save One Life
Tirsa Carcamo Bonilla, Project Lead, Honduran Society of Hemophilia 
Trudy Nyakambangwe, Founder, Child and Youth Care Zimbabwe
• Members of the global hemophilia advocacy community
• Members of the global rare disease advocacy community
• Hematologists / Paediatric Hematologists / Hematologist-Oncologists
• Health/Rare disease policymakers and NGOs
• Patients, family members and carers of those affected by hemophilia
• Industry stakeholders in hemophilia and other rare diseases/trade associations
• Payers and regulators
