The landscape of hemophilia care has evolved greatly over the last few decades. Scientific innovation has unlocked a wide range of treatment options, allowing those living with bleeding disorders to focus less on living with their disease and more on living the life they choose. As the next generation of leaders rise in this new landscape, momentum cannot slow down. The global bleeding disorder community still faces significant barriers to achieving equity across all regions, inclusion of all people, and standards of care that encompass holistic well-being.

In the third and final event of our Hemophilia Changemakers 2023 Series, in partnership with Sanofi, we are harnessing the history of changemaking in the bleeding disorder community to empower and equip the next generation. We will bring together a diverse group of revolutionary leaders to share their expertise on actions we can take to improve the lives of those living with bleeding disorders for decades to come.

Join this event to learn how you can advance changemaking across these key areas: 

• Data: Effectively generate, collect, and use data to create change with governments, policymakers, and healthcare systems.

• Inspiration: Use the barriers you break down in your own life to inspire other people with bleeding disorders to speak up and advocate for their care.

• Education: Raise awareness of advancements, gaps in care and advocacy initiatives by utilizing already accessible information, translations and resources.

• Storytelling: Acquire effective and impactful tools to turn your experiences into evidence that drives the future of care.

• Connection: Develop partnering strategies to establish multi-stakeholder work across the bleeding disorder community, between rare disease organizations, and across the health industry to collectively transform care.

The agenda will be timed in due course. Times and speaker allocations are provisional.